Posted by okydoky on August 16, 2008, at 13:37:39
In reply to Dr-Bob v2.0: This website could EVOLVE like this.., posted by Marty on August 13, 2008, at 16:13:56
> PBabble needs to EVOLVE or risk extinction, gradually fading into the web history. While the value proposition of the competitors always increased in the last couple years, the value proposition of Dr.bob.org has not.
>I would love to see a self help mental health site that is not founded by or run by mental health professionals. I think that the essence of mental health self help could be addressed fundamentally different and because of this perhaps be able to provide a very different type of platform and/or function in addition to what psycho-babble already does. One which has the potential to see some potential interesting links in about 2 to 4 years (of knowledgebase enrichment/development by volunteers) what scientists from many different fields could finally see in 15, 20 years or just NEVER see because of the slow pace at which links are made between fields and subfields/areas of research).
You have provided many different examples here. I do not know much about other sites but if they are run by mental health professionals I do believe from my experience they would be similar in process and function with certain of parameters explicitly directed at or for the mental health community. I think it is stifling but I am beginning to understand it serves a very specific purpose having to do with the established functions of real life mental health facilities and the needs of their patients And before people get up in arms I am not purposing that this is the end all of psycho-babble, not in the least. This is a very simplistic explanation of my (attempt at) understanding of this online community and the whys and hows of it. What you are proposing has a much broader function(s), with so much potential as you described and probably, over time can affect outcomes by its functions.
> - A user profile section including a biological background(age, sex, etnicity, disease running in the familly, everything related to health and experiences/reaction with prescribed and street drugs) and an historical background (personality as a child, familly history/problems, traumatism/adverse life situation) and diagnostic history.
>
> - A journal which would include affect/mood/motivation/sexual functionning/cognitive functionning/...every pertinent symptoms. AND a medication journal with the drug/supplement/therapy, prescription (dosage, frequency), benifical effects assesment, SIDE EFFECTS assesment, rating on some aspect of the subjective experience (cost vs effiency etc).. also when a med is added or withdraw a more detailed questionaire could be offered/'requested' after sometime and would be an opportunity to gather even more data on a varity of aspect that you wouldn't want to include in the 'day-to-day' journal.
>
> - Patient bloggin to allow him to express itself freely without a rigid format but every post linked to the other journals. Allow video blogging (Vlog).I see a lot of the above if implemented on psycho-babble having very practical and immediate applications.
I am not familiar with blogging. If this were a different site (still a message board format) could it not allow for a less rigid format and therefore the patient or poster to express himself more freely? Or does the blog format allow for this more readily than the current message board format of psycho-babble? I searched a bit and here are two sites I found on the topic:
http://www.commoncraft.com/archives/000768.html
http://cmnu531.blogspot.com/2006/04/blogs-vs-message-boards.html
There was discussion of implementing some of what is currently done on a blog on a message board format. Do you think having one format would be more advantageous than two? (I apologize for not having any prior knowledge about blogs or even much on other message boards.)
> - A wiki (like wikipedia: an open encyclopedia) on everything related to mental disorder: ..
> - Medication basic info page
> - Knowledgebase comprised of empirical data (Research paper backed),
..,a platform to exploit the collective knowledge/experiences of a massive community of willing contributors where, because of the platform good data gathering/data relationing/Analysis and datamining, the total value generated would become with time bigger than the sum of the individual contributions. The created value for the users and the researchers would be many time more than the actual value generated/offered
I cannot remember (I have cognitive problems) but I think it was some programming on Charlie Rose having to do with A nonproprietary automated clinical research data collection system. There were scientists discussing how when research had been linked, across different fields sometimes even, certain outcomes could be reached with no further research needed. Outcomes were reached in a very short time span just because someone bothered to collect and link a variety of research which was readily available. I think your ideas are great and would like to be involved.I dont know how I could help you except to add some input in the discussion you started. I myself would like to see another site with a lot of the attributes you describe. As far as psycho-babble goes I believe much of what you propose is beyond the scope and purpose of this site.
I would like to see further discussion about either broadening the scope of this site or starting another. There are no doubt others posting on this site who have more knowledge and could provide more input than I.>if I could get some sponsorship/risk capital/financing and the participation of a couple clinicians/researchers willing to share their ideas as to how this platform could generate optimal value for them.
Do you believe you have the requisite skills to create or co-create such a website?
I have a retired research psycho pharmacologist in mind that might be of some assistance as he spent almost the entirety of his career in research. (I have not been in touch with him in a couple of years though)
As far as capital/financial backing have you researched anything yet?
If you could generate enough interest/participation by all that you mentioned and with it establish some type of proposal perhaps we could go to several established foundations with proposal in hand to ask for financial backing or seed money?
Background:
(I was involved several years ago in establishing a rehabilitation facility for people suffering with mental health problems in society where we received several million dollars for as I remember a three year start up. The money was provided to a fiduciary with legal arrangement as to managerial terms of the fiduciary.)Good Luck,
oky
poster:okydoky
thread:845970
URL: http://www.dr-bob.org/babble/admin/20080719/msgs/846693.html