Posted by B2chica on September 9, 2011, at 15:30:19
In reply to Re: Topamax, mood stabilizers? » B2chica, posted by floatingbridge on September 9, 2011, at 8:35:13
no prob. i dont mind sharing at all. but it was the worst experience to date on medications. i later found out that part of the problem of reaction was the way the doc put me on the meds and i could have stroked out.
i was on symbyax and sonota and straterra i think, cant remember that far back. i think there were three that i was on. anyway, since i was in the hospital two weeks with no change (cuz pdoc was not changing my meds per my suggestion -practically screaming this-)anyway, another pdoc finally came in. first thing i told him was i wanted off and i read that mood stabilizers are good for bipolar, i wanted a new regimine. He said absolutely.
that night i took no symbyax but took zyprexa, seroquel, that next morning i took triliptal (high dose cant remember what exactly), wellbutrin and one other thing cant remember exactly. (this was in march of 04)So took pills about 9:00 (still in hospital) went outside for smoke -we used to be able to do that. Then went in for group so id say about 10-10:30 i started to have a reaction, i started to feel funny, my eyes got all blurry, i started to feel tingly all over and it was physically hard for me to move i started to try to talk and i couldnt. a girl i was hanging out with started to tell nurse something was wrong with me. nurse didnt believe her as she was kinda a trouble maker. she kept interrupting nurse and telling her about 5 times...FINALLY the girl next to me asked me if i was ok. i was able to slowly move my head and groan at her. i remember she touched my arm and my arm had posturing reaction. and i groaned and stared again at my friend.
FINALLy the nurse quickly got other nurses and came and got me. by that time i was trying to walk as there was a nurse under each arm.
all i wanted to do was tell the nurse it felt like my head was on fire...HOT is what i wanted to say and i couldnt get that one word out. i heard it in my head but i couldnt get it out, by the time i reached the door of the room i could no longer help walk, they had to drag me the rest of the way to my room.
i was "locked-in" for about 12 hours.
locked in is a brain injury term used for folks who are cognitively aware of everything but physically cant move anything. you are literally 'locked within your body'.
anyway. i told pdoc after that i still wanted to stay on triliptal, i figured that was as bad as it got. why not stay on it after initial crap happened.
So i was on it for about 6 months till i finally switched pdocs and he truly disliked my whole regimine and took me off most of what i was on.anyway. i remember having mood swings on it. after that ordeal.
but the wellbutrin alone was fantastic. till that pooped out.but again. this horrible experience was in part due to the way the gave me the medication.
they did a QUICK one day switch in meds. no titration. it was probably part from going off some meds instantly, and going on several and decent high dosages rather than going up slowly.so i dont want to scare anyone off the drug itself.
but now you know why i'm such an advocate of SLOW titration of medication either off OR on.
also my pdoc now (and after that incident) is a perfect match for me in that he is VERY cautious with titration both ways.
Best wishes! fb
b2c.
poster:B2chica
thread:996245
URL: http://www.dr-bob.org/babble/20110902/msgs/996291.html