Posted by JusALIlbit on March 15, 2011, at 0:05:10
In reply to Re: New-No Progress in a Year- HELP!, posted by Cydnie on March 14, 2011, at 9:27:11
> I haven't had any progress in a year either and was abandoned by my pdoc of years, so you're not alone. I feel so depressed, and have been going through pain and other things. So after going to a million doctors, my rheumatologist sent me to a specialist rheumatologist, and they are allergist/immunological rheumatologists. She really looked at everything, older labs, and did tons of new ones before finally telling me after years of looking, what it was (mast cells). I've heard of burning mouth syndrome, I think these doctors can even tell you about this as well, and they do labs for lyme's. This was in Boston, so I don't know where you are. I also am not far from McLean hospital, you asked about hospitals that deal with mood disorders. Someone I know works there (I used to too, back when I was much more functional, and was a mental health counselor!!! seems like so long ago!!) Anyway, I had a horrible time finding a good pdoc and just began asking everyone I knew (if you are in Boston, or near, you can PM me, and I can recommend someone great). If you're not, what I did was come on here and ask, ask family about theirs, ask my pcp, and called different docs. If they seemed remotely mean (bad trigger for me), then I don't ever call back. I also called my insurance company and got a list of docs who were accepting new pts and took my insurance and cold called, but also asked my doc and even can ask pharmacist if anyone knew them. I hope some of those suggestions work. Good luck!
Hi cindy. I ahve also seen an immunologist/rheumatologist and she did the test for mast cells which was negative. Also saw a neurologist and tested for MS etc. and neagtive also. Saw my pdoc today and she still isn't taking me serious and I wasn't in the mood to fight. I am withdrawing from Neurontin and having a lot of stomach/gi cramps and aches. I am a few hours from Boston, so may contact you for your doctors info or you can pm me. Also, I like your suggestions for finding a new pdoc. Thanks and good luck also. Keep in touch.
poster:JusALIlbit
thread:979878
URL: http://www.dr-bob.org/babble/20110220/msgs/980483.html