Posted by bimini on April 14, 2005, at 19:15:34
In reply to I don't know what to do, posted by Nimrod on April 11, 2005, at 6:27:43
Nimrod, your story resonated with me. Cracked up at your signature, lol.
"Mr. God Complex thinks it's a miracle cure" loved that one. Was the antipsychotic Abilify which gave you headache and nausea? Effexor catapulted me in and out of neverland, need a cane for balance and walk along walls and hold onto furniture. Coming off was worse, everyhting looked like strobe light lit and sound garbled up, arghh.For me it also started suddenly, I was hit by a Mack truck and I wasn't supposed to feel like I was hit by a Mack truck. I did not get diagnosed or told anything and with arrogant grins it was suggested I was on drugs or plain old as the hills (I was 45) and therefore could expect to disintegrate.
My vision had more than doubled, I saw four seperated images each having more echos. Objects melted into one another, moved and wobbled I could not recognize and figure out individual things. Letters and numbers looked like foreign symbols most of the time and movement lost direction. I spent the first 6 to 9 months falling over getting bruised. Arms and legs get sorted out from the universe and obey to my command not much better than a classroom full of 7th graders. Heartrate, temperature and bloodpressure fluctuates madly. I get lost, can't decide what language I am hearing, misinterpret visual input and don't recognize partial visibles or can't connect the form with the word.
Two months after the accident I had a seizure, I was told it was a panic attack. I since have partial and complex partial seizures daily but Docs like panic attacks better it seems. I had an abnormal MRI showing blood spots and a lesion which was dismissed as insignificant. I requested an EEG to disprove seizures and was denied.
This is now two years ago and I have learned A LOT. The docs I was refered to stuck to their tight lipped motto, not sure if they thought that was of any benefit to me or a policy they had to obey. I was told to stop the car when I feel a seizure coming on. I referred myself out and got physical and vision therapy. It was the behavioral vision excercises that gave me clear feedback to what was happening to my processing. I am learning to be aware of losing contact, at least to some extend. The time lost in seizure is gone, not on the tip of tongue, not temporarily out of reach, but zapped from existence.
Seizures aren't well understood and misdiagnosed, underdiagnosed or overdiagnosed when young. From what you wrote you may be suffering from 'storms' in your brain you need to find the cause and rule out the usual suspects so to speak.
Write down how you feel from day to day. See if you can find common events preceding bad days, what made good days better. What role does stress play and how is your sleep. How is your diet, do you eat regular meals. Ask for a referral to a Neurologist and a neuropsychological evaluation. Write down your symptoms, brief and honest, collect copies of reports of your other Docs and read them. Ask your family for input or to come with you to appointment to explain their observation of you. Take charge in your care, become informed and if Big Heap Snake Oil Medicine Man gives you the creeps don't go back there.
I lost my job, I avoid driving so I don't endanger others. I wish the world would just slow down and let me function at a speed that works for me. I am now self employed and sucessful, helped by an abundance of luck, despite myself.
Hugs,
Bimini
poster:bimini
thread:482674
URL: http://www.dr-bob.org/babble/20050413/msgs/484344.html