Posted by phrightener on October 25, 2004, at 14:22:14
Thank you so much for taking the time to read this post! If you have had an aweful experience with this drug or are a current user please add whatever info you possibly can! My fiance's life might depend on it!
She was first given Topamax about a month ago as it was prescribed by her sleep disorder doctor to treat RLS (restless leg syndrome). She lost some weight and at the end of the month started getting a tingly feeling in her hand.
After this time she stopped for about a day and then began to take it again (25mg). The next day she began to get tremors/convulsions in her arm during the day. Her doctor, thinking it was RLS creeping into the daytime, upped it to 50mg and then the next day to 50mg to take during the day as well as night.
The problems got WORSE and we dont know if it was the Topamax causing this.
She started to get convulsions that took over her right half of her body that after a day or two continued up into her head where she then would get choking fits. If you saw this you would have thought she was having a seizure of some sort.
Then came the round of emergency room hospital visits. AFter 3 hospitals, a slew of neurologists, 8 doctors, an MRI, an EEG, and two Cat Scans, NO ONE had a clue what was wrong with her.
They told her it was stress because all the tests (even bloodwork) came up NEGATIVE.
Her symptoms are body convulsions (seizure like)that will occur every 15 minutes for about 3-20 seconds a time, forgetfullness, speak slurring, lack of concentration. Her choking was so bad that she could not eat for 3 days straight because the choking fits could come at anytime. When she sleeps, she has NO CONVULSIONS or anything! This only happens when she is awake!
The doctors have since taken her off the medication and we hope that as it gets out of her system she will get better!
If you know of anything about this PLEASE RESPOND with whatever info you have! I thank you all in advance!
poster:phrightener
thread:407080
URL: http://www.dr-bob.org/babble/20041024/msgs/407080.html