Posted by lucy stone on July 30, 2004, at 22:09:29
In reply to Re: are you ok fires? » lucy stone, posted by Ilene on July 30, 2004, at 18:52:52
The treatment has been very frustrating because as you know these disorders are difficult to treat. Her situation is difficult because she is a competitive runner and dancer and her syncopy is triggered by exercise. She needed the tilt table to differentate between the NCS and the type of cardiac defect that make healthy young people die with exercise. Fortunately her type is not dangerous expect for the possibility of hurting herself when falling. Dehydration makes it worse and we live in a hot part of the country. She takes a beta blocker and salt tablets, stays hydrated and tries to eat a balanced diet. She also has more trouble when she is tired and stressed so we encourage her to get enough sleep and manage her stress. Her condition is better right now although it goes in cycles. She has also learned to recognize the signs so she can sit down when she feels faint. In her case it is familial because my husband's brother has the same condition. Just to keep it on the psych board, she is recovered from anorexia. The NCS started when she when through puberty, the same time she developed her eating disorder, and it was misdiagnosed for several years as a side effect of her disorder. It wasn't until she had maintained a normal weight for over a year that the docs looked for something else as a cause of her fainting.
> > My daughter has NCS, a condition with some symptoms similar to POTS.
>
> What kind of treatment is your daughter getting? Neurally mediated hypotension and NCS are quite similar. I take Florinef, I avoid heat, and I don't exert myself.
>
> I self-diagnosed too, but my last internist, who is very experienced with CFS & NMH, didn't think a tilt-table test would tell him anything he didn't already know. Besides, my BP drops by 20 mm when I go from lying to standing as it is.
poster:lucy stone
thread:368898
URL: http://www.dr-bob.org/babble/psycho/20040728/msgs/372532.html