Posted by muffled on November 10, 2008, at 17:10:49
In reply to Re: Research project, posted by Dr. Bob on November 10, 2008, at 2:39:37
> Hi, everyone,
>
> Thanks for letting me know how you feel. :-) I'm trying to be careful about what I say because I don't want to bias the results. But if I'd wanted to set up an environment of secrecy, I wouldn't have said anything! The research participants will be followed for 3 months. 230 is the upper limit. They're not required to come. If they do come, they're not required to post. And they won't all come at once. Yes, it's received IRB approval.*I appreciate you saying something about this. Did you tell us originally out of consideration or because you HAD to to get approval....?
Like as not there may have been some comment if there was allasudden a large influx of posters.
> Like you, they'll be real people who come for support and education. Like you, they'll decide whether to ask for help or share joys and sorrows. Like you, they may need help getting oriented and will need to follow the board guidelines. Unlike some of you, they won't be finding this site by themselves. Please treat them the same way you would anyone else referred to this community by a third party. I'd rather let them decide what else to say about themselves. Like with anyone else, you'll decide whether to interact with them. Please don't jump to conclusions about or pressure them. I'm concerned that some newer posters may already be feeling unwelcome.*So, to rephrase.
The people comming here will be people just like the rest of us, people with mental health issues(though IMHO, EVERYBODY in the WORLD got 'issues' of one kind or another...), comming voluntarily to try out babble, who will possibly be looking for support?
But unlike us, they will be reporting back how it goes for them?(which BTW doesn't bother me).
I am not here so much anymore, but it would definately be a big deal for me, alla this, if this was 'my board' that I hung out at primarily.
That phrase "support and EDUCATION" kinda makes me nervous.....
Yes, I am a tad paranoid.
Also, as ever, you own the rights to what is posted here, so posts here, while (thankfully) anonymous, could be used in a presentation.
> I see anxiety as a natural result of change, especially with incomplete information. I apologize for not consulting with you all earlier. I think the reaction here was also a sign of the cohesiveness of this community and a desire to protect it from disruption. And I agree, a large influx of new posters could be disruptive. Do you think there should be some sort of limitation?*TY for apology. Limitation?How could you ask that? You have the #'s of new posters etc. Likely any huge numbers would be noticed. Its always a bit of time requiered B4 one feels more 'at home' in a community, it will take the new posters a bit of time to feel at home.
> There may also be anxiety about some posters being favored over others.*?this is SO classic Bob, to say something like this.....<sigh>
> I hadn't thought of the archives separately. But they may already be considered a resource for patients or trainees. What concerns do you have about that?*For myself, at one time I kinda liked the thot of the archives, but now I have changed my tune and I do not like the thot. I post on a board where, to my understanding, the archives are only kept for a relatively short period of time. I prefer that. There may come a time (I hope) where I am well enuf that I would rather not have my old 'stuff' ever be possibly connected to me. If its deleted, then it'd GONE, pretty much anyways of course.
> Finally, I agree with Seldom, good can come of this -- for current posters, for new posters, and for the community as a whole. Let's try to be open to that possibility.
*Good can come out of anything. Good can come out me getting the crap beaten outta me...
However, I also hold that growth is painful.
So maybe it will be OK.
I still however will not likely be posting much here, as once again Bob, you have reinforced the fact that you just don't have time to manage babble. Therefore, it remains rather unsafe seeming to me. I personally prefer that Bob NOT be here, but at least he should be more avail when needed, and if not to babblers in general he CERTAINLY should be MUCH more available to his deputies.
I digress.
I am scattered.
But manoman, I am sure impressed with how others responded here, there sure are some wonderful people here :-) and obviously they really care for this community enuf to express their concerns. I think that its cool so many posted to this.
Take care all.
M
poster:muffled
thread:861412
URL: http://www.dr-bob.org/babble/admin/20081003/msgs/862126.html