Posted by tabitha on December 18, 2003, at 21:07:26
In reply to Re: A Suicide in an Online Peer Support Group, posted by Dr. Bob on December 18, 2003, at 19:49:42
> > Kind of makes me squirm. An uncomfortable reminder that we're all research subjects and our words can be used in Bob's publications. I know we signed the release form and all, but somehow it's disturbing.
>
> I can see that. Maybe the focus here is so much on support that it can be disorienting -- or even feel like a violation -- when the site is used for other purposes?Yup, I think you've captured what I was feeling. It also makes me wonder if you care about us at all, or just see us as subjects. I hope it's at least a little of both.
>
> > I recognize some of the posts from people who aren't here anymore, who left with bad feelings about the site. Can't help thinking they would not want their words used, even though they clicked the permission button during the registration.
>
> Yes, that's an issue...It's good to hear you consider it an issue, whether you do anything about it or not.
>
> > Honestly it seems tacky and exploitative seeing sar's death turned into a case study. Count me as creeped out.
> >
> > tabitha
>
> What about seeing it, as Nikki suggested, as a way to try to increase awareness and understanding of online communities?
I suppose I could try that, but what's wrong with also seeing it as a little disturbing and violating to us 'subjects'? I'm not going to crusade to stop your publication or anything. ... OK, maybe calling it 'tacky and exploitative' was a bit extreme, I'll give you that.I wonder what sar would want.
poster:tabitha
thread:290698
URL: http://www.dr-bob.org/babble/admin/20031120/msgs/291435.html