![[dr. bob]](/dr-bob-sm.gif)
Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 25 of 25. This is the beginning of the thread.
Posted by ny2bk on January 16, 2008, at 8:53:14
For the ones who might not know of this group,im pasting the link because i see many questions latly that are addressed here,and more help might be here by simply reading the archives.
Posted by stargazer2 on January 16, 2008, at 12:19:41
In reply to ATTN NARDIL USERS, posted by ny2bk on January 16, 2008, at 8:53:14
Posted by Phillipa on January 16, 2008, at 12:20:18
In reply to ATTN NARDIL USERS, posted by ny2bk on January 16, 2008, at 8:53:14
Did you see the new neurotransmitter board? Phillipa
Posted by Phoenix1 on January 16, 2008, at 13:19:11
In reply to ATTN NARDIL USERS, posted by ny2bk on January 16, 2008, at 8:53:14
> For the ones who might not know of this group,im pasting the link because i see many questions latly that are addressed here,and more help might be here by simply reading the archives.
Hi ny2bk,
Agreed, new Nardil users should check the archives as there are literally hundreds of posts on the issue. I know because I've read them all in great detail. Repeatedly. I agonized over them.
Here's the link again, as I don't think it made it though on your post:
http://www.dr-bob.org/babble/more.html#Archives
But I think it's OK for new Nardil users to repeat previously answer questions here. Sometimes people just want to reach out and interact with a real live human being, and have their concerns addressed. I'm happy to do this. Reading the archives is a start, but they're not too "touchy feely". It's nice to have the community here to support new Nardil users, even if the questions may be repetitive.
As a new Nardil user, maybe I'm one who is asking questions that have been answered sometime in the archives. Maybe I should re-read them. But it's also nice to interact with other Nardil users, both the experienced ones, and the ones just starting out like me.
Feel free to disagree, I'm often wrong.
Phoenix1
Posted by ny2bk on January 16, 2008, at 14:45:54
In reply to Re: ATTN NARDIL USERS » ny2bk, posted by Phoenix1 on January 16, 2008, at 13:19:11
> > For the ones who might not know of this group,im pasting the link because i see many questions latly that are addressed here,and more help might be here by simply reading the archives.
>
> Hi ny2bk,
>
> Agreed, new Nardil users should check the archives as there are literally hundreds of posts on the issue. I know because I've read them all in great detail. Repeatedly. I agonized over them.
>
> Here's the link again, as I don't think it made it though on your post:
>
> http://www.dr-bob.org/babble/more.html#Archives
>
> But I think it's OK for new Nardil users to repeat previously answer questions here. Sometimes people just want to reach out and interact with a real live human being, and have their concerns addressed. I'm happy to do this. Reading the archives is a start, but they're not too "touchy feely". It's nice to have the community here to support new Nardil users, even if the questions may be repetitive.
>
> As a new Nardil user, maybe I'm one who is asking questions that have been answered sometime in the archives. Maybe I should re-read them. But it's also nice to interact with other Nardil users, both the experienced ones, and the ones just starting out like me.
>
> Feel free to disagree, I'm often wrong.
>
> Phoenix1Sorry as with my grammer,i literaly swing by here,i must not have noticed i did not add the link...
Also i did not post this,or bring it up as a insult to asking here,rather as a additional and more precise soruce of information.Good Luck
Posted by Justherself54 on January 16, 2008, at 23:39:33
In reply to Re: ATTN NARDIL USERS » ny2bk, posted by Phoenix1 on January 16, 2008, at 13:19:11
I've read tons of the archives and I know some of my questions have been answered in them, but I agree with Phoenix1..in my case it's helpful and important to have contact with other Nardilites for support..
Regardless that the answer may be in the archives, when you ask a question and get a response from someone who is experiencing the same side effects you are "right now", or whatever the case may be, you don't feel so alone..
Some of the posters in the archives are no longer active, so you can't ask them to explain further if you still have questions..and with a lot of posts, new or archived, they can get way off topic and you end up reading post after post that no longer pertains to the original..
Just my $.02 worth
Posted by ny2bk on January 17, 2008, at 8:56:45
In reply to Re: ATTN NARDIL USERS, posted by Justherself54 on January 16, 2008, at 23:39:33
> I've read tons of the archives and I know some of my questions have been answered in them, but I agree with Phoenix1..in my case it's helpful and important to have contact with other Nardilites for support..
>
> Regardless that the answer may be in the archives, when you ask a question and get a response from someone who is experiencing the same side effects you are "right now", or whatever the case may be, you don't feel so alone..
>
> Some of the posters in the archives are no longer active, so you can't ask them to explain further if you still have questions..and with a lot of posts, new or archived, they can get way off topic and you end up reading post after post that no longer pertains to the original..
>
> Just my $.02 worth
>
>
>
>Lol wow where did i post that i was in anyway discrediting nardil being talked about here?
The only objective to my post was to make known a site that is currently running that is soley a nardil site with many verteran usesers and with the semi-recent formulation change being a constant topic.
I wasnt even speaking of babbles archives of nardil,above my post you can see the link i give is to an entire different site,and again its just to give some more options,how my post came across as somehow knocking nardil talk here is beyond me,maois are actualy the only meds i even post about i wouldent want it become a non topic.
Shaking my head on how trying to be helpful can bite u in the a -.
Posted by Phoenix1 on January 17, 2008, at 10:07:08
In reply to Re: ATTN NARDIL USERS, posted by ny2bk on January 17, 2008, at 8:56:45
> > I've read tons of the archives and I know some of my questions have been answered in them, but I agree with Phoenix1..in my case it's helpful and important to have contact with other Nardilites for support..
> >
> > Regardless that the answer may be in the archives, when you ask a question and get a response from someone who is experiencing the same side effects you are "right now", or whatever the case may be, you don't feel so alone..
> >
> > Some of the posters in the archives are no longer active, so you can't ask them to explain further if you still have questions..and with a lot of posts, new or archived, they can get way off topic and you end up reading post after post that no longer pertains to the original..
> >
> > Just my $.02 worth
> >
> >
> >
> >
>
> Lol wow where did i post that i was in anyway discrediting nardil being talked about here?
>
> The only objective to my post was to make known a site that is currently running that is soley a nardil site with many verteran usesers and with the semi-recent formulation change being a constant topic.
>
> I wasnt even speaking of babbles archives of nardil,above my post you can see the link i give is to an entire different site,and again its just to give some more options,how my post came across as somehow knocking nardil talk here is beyond me,maois are actualy the only meds i even post about i wouldent want it become a non topic.
>
> Shaking my head on how trying to be helpful can bite u in the a -.Hi ny2bk,
Sorry, I jumped to a conclusion that you were linking to the archives. I apologize for that.
Even with that said, I appreciated that you were trying to help Nardil users, and that you weren't trying to push us elsewhere for answers. I guess what I was trying to say was that I'm glad we can post here, asking our Nardil questions, even if they have already been talked about. It's nice to have a place to talk to other people who are going through what you are, and those who have more experience..
Anyways, I appreciated your post, but made an assumption about what you were trying to link to. Sorry for that. Thanks for offering an alternative resource for us Nardil users. And I'm really sorry if you were offended by anything I said. That wasn't at all my intention.
Phoenix1
Posted by Justherself54 on January 17, 2008, at 10:19:42
In reply to Re: ATTN NARDIL USERS » ny2bk, posted by Phoenix1 on January 17, 2008, at 10:07:08
I'm sorry if I offended you in any way..that was not my intent..I've read before that the reformulation of Nardil was a nightmare for many users..but had never seen a website with so many postings about it before..thanks for the info..
Posted by ny2bk on January 17, 2008, at 11:45:11
In reply to Re: ATTN NARDIL USERS/ny2bk, posted by Justherself54 on January 17, 2008, at 10:19:42
> I'm sorry if I offended you in any way..that was not my intent..I've read before that the reformulation of Nardil was a nightmare for many users..but had never seen a website with so many postings about it before..thanks for the info..
No problem,i just am an advid maoi poster,read,user etc,
Fact is when i wanted off parnate 3 years ago that same topic was dominenent there,it is what kept me from leaving parnate,i was in awe as i read 20 year plus Nardil users pleaing for help with this.
I remeber they even had someone help with creating a liquid version of nardil themselves to help out,and never posted it openly but only to those who proved via email they were to use a legit script and recomend to a compounding pharmacy to make it for them,where this ever went i dont know.
Sad because reading,it seems like the orignal formula of nardil was a godsend drug for many many people,a gold standerd,and i believe or wish i were around when it was available.
Posted by Phoenix1 on January 17, 2008, at 12:31:37
In reply to Re: ATTN NARDIL USERS/ny2bk, posted by ny2bk on January 17, 2008, at 11:45:11
> > I'm sorry if I offended you in any way..that was not my intent..I've read before that the reformulation of Nardil was a nightmare for many users..but had never seen a website with so many postings about it before..thanks for the info..
>
> No problem,i just am an advid maoi poster,read,user etc,
>
> Fact is when i wanted off parnate 3 years ago that same topic was dominenent there,it is what kept me from leaving parnate,i was in awe as i read 20 year plus Nardil users pleaing for help with this.
>
> I remeber they even had someone help with creating a liquid version of nardil themselves to help out,and never posted it openly but only to those who proved via email they were to use a legit script and recomend to a compounding pharmacy to make it for them,where this ever went i dont know.
>
> Sad because reading,it seems like the orignal formula of nardil was a godsend drug for many many people,a gold standerd,and i believe or wish i were around when it was available.Hi ny2bk,
I have read so much about how the reformulation was a disaster for so many users. I think Pfizer totally screwed up as far as customer service and quality control are concerned. But since it's not a profitable drug for them, you can see why they tried to ignore the problem. It's not right, and I don't know how it got approved by your FDA, and our equivalent organization. There is data missing to prove that the new formulation is as effective as the old. Missing documentation that would normally be required for a generic to get approved...
Just a question to see what you think. As a "new" formula Nardil user, never having experienced the old formula, would the new one be less effective for me, or would I need a higher dose to get the same effect? Because so far I have found it to be quite effective. I wonder how my experience would differ if I were on the "old" Nardil.
I also understand that some of the concerns are with regards to lot-to-lot differences, so one production batch seems different from the next. I'm a bit worried about running into this. In Canada, we have a different manufacturer than the US I think. Here, a company called ERFA has it made in either France or Belgium I think. Who makes the US version and is it the same SOURCE (i.e. factory) as the US version?
Phoenix1
Posted by Justherself54 on January 17, 2008, at 13:05:52
In reply to Re: ATTN NARDIL USERS/ny2bk » ny2bk, posted by Phoenix1 on January 17, 2008, at 12:31:37
Speaking of ERFA, I called them this morning. Apparently the release date has now been changed to "something the beginning of next week". So I started calling pharmacies..I finally found one who had one bottle in stock..however, it's in a city 3 hours away..Luckily I have a friend that can pick it up for me and send it on the bus or courier or whatever..if I didn't get proactive and start making numerous phone calls I would be having to titrate off it with my remaining meds (I'm down to 5 days worth)..I just think this is totally unacceptable.
I even called some internet pharmacies..they don't have it either..same thing..they are waiting for it..one told me that it's happened with other meds and the manufacturer has changed the release date over and over again..I hope this isn't the case with Nardil, as I'm sure there are many who are running low and are going to get an unwanted surprise when they go to refill it..
Posted by Phoenix1 on January 17, 2008, at 13:09:59
In reply to Re: ATTN NARDIL USERS/ny2bk, posted by Justherself54 on January 17, 2008, at 13:05:52
> Speaking of ERFA, I called them this morning. Apparently the release date has now been changed to "something the beginning of next week". So I started calling pharmacies..I finally found one who had one bottle in stock..however, it's in a city 3 hours away..Luckily I have a friend that can pick it up for me and send it on the bus or courier or whatever..if I didn't get proactive and start making numerous phone calls I would be having to titrate off it with my remaining meds (I'm down to 5 days worth)..I just think this is totally unacceptable.
>
> I even called some internet pharmacies..they don't have it either..same thing..they are waiting for it..one told me that it's happened with other meds and the manufacturer has changed the release date over and over again..I hope this isn't the case with Nardil, as I'm sure there are many who are running low and are going to get an unwanted surprise when they go to refill it..My G*d that worries me. Stopping now is not an option. No one in my very large metropolis has it in stock. No one. I called 30-40 pharmacies. Only one hospital had it, but wouldn't give it to me because they only dispense to inpatients.
ERFA PROMISED me that they would send stock to my pharmacist if there was a problem. Let's see if they come through.
Phoenix1
Posted by Justherself54 on January 17, 2008, at 13:11:10
In reply to Re: ATTN NARDIL USERS/ny2bk, posted by Justherself54 on January 17, 2008, at 13:05:52
Sorry ny2bd..didn't mean to leave your name in the subject line..meant it for all users..especially Canadian..this may not apply at all for US or other countries..
Posted by Justherself54 on January 17, 2008, at 13:30:43
In reply to Re: ATTN NARDIL USERS/ny2bk, posted by Phoenix1 on January 17, 2008, at 13:09:59
I know..it worries me too..took a pile of phone calls to get one bottle of 60..another pharmacy in the city has one customer on it..they are going to call her and see what she requires..they may be able to get me 30 pills..I'm sure my friend will be delighted to drive all over the city to pick up meds and ship them off to me.
I've put a call in to my pdoc to warn him that if he has any other patients on Nardil they could be in trouble trying to get their scripts filled..
This shouldn't be allowed to happen..
The woman I spoke to at ERFA was very short and abrupt, so I didn't ask her if she had any in stock..maybe she'll be more forthcoming with my pharmacist..
Posted by Phoenix1 on January 17, 2008, at 14:18:56
In reply to Re: ATTN NARDIL USERS/Phoenix1, posted by Justherself54 on January 17, 2008, at 13:30:43
> I know..it worries me too..took a pile of phone calls to get one bottle of 60..another pharmacy in the city has one customer on it..they are going to call her and see what she requires..they may be able to get me 30 pills..I'm sure my friend will be delighted to drive all over the city to pick up meds and ship them off to me.
>
> I've put a call in to my pdoc to warn him that if he has any other patients on Nardil they could be in trouble trying to get their scripts filled..
>
> This shouldn't be allowed to happen..
>
> The woman I spoke to at ERFA was very short and abrupt, so I didn't ask her if she had any in stock..maybe she'll be more forthcoming with my pharmacist..It's funny, the lady at ERFA was VERY pleasant and HELPFUL to me. Then towards the end of the conversation she asked what pharmacy I was calling from. Haha, when she found out I was actually just a patient she stopped talking so much. Just said to have my pharmacist call her, and took my info.
Posted by Justherself54 on January 17, 2008, at 16:07:56
In reply to Re: ATTN NARDIL USERS » Justherself54, posted by Phoenix1 on January 17, 2008, at 14:18:56
Just spoke to my pharmacist..I think it was ERFA who informed her that the shipment is on the plane bound for Montreal where it will be sent to the distributors..hopefully they have manufactured enough that we won't have to go through this again..ERFA also told her they didn't stock any in their warehouse..
One of the pharmacists I was talking to in the city said it's not true about the internet pharmacies scooping meds up as this problem (not just with Nardil) has been going on for years..way before the internet pharmacies started up..in fact they have been waiting for over 3 months to get 4 different medications..pretty scary..
It's been an eye-opener..I'll never assume again when I go to get a prescription filled it's going to be available..in the meantime my friend is picking up one bottle and express posting it to me and another pharmacy in the city is holding on to their one remaining bottle for me until I see if my pharmacy is able to get enough of the new shipment..sorry this post has gotten long winded..but I'm pretty upset about this whole thing..
Posted by Phoenix1 on January 18, 2008, at 9:20:58
In reply to Re: ATTN NARDIL USERS/Phoenix1, posted by Justherself54 on January 17, 2008, at 16:07:56
> Just spoke to my pharmacist..I think it was ERFA who informed her that the shipment is on the plane bound for Montreal where it will be sent to the distributors..hopefully they have manufactured enough that we won't have to go through this again..ERFA also told her they didn't stock any in their warehouse..
>
> One of the pharmacists I was talking to in the city said it's not true about the internet pharmacies scooping meds up as this problem (not just with Nardil) has been going on for years..way before the internet pharmacies started up..in fact they have been waiting for over 3 months to get 4 different medications..pretty scary..
>
> It's been an eye-opener..I'll never assume again when I go to get a prescription filled it's going to be available..in the meantime my friend is picking up one bottle and express posting it to me and another pharmacy in the city is holding on to their one remaining bottle for me until I see if my pharmacy is able to get enough of the new shipment..sorry this post has gotten long winded..but I'm pretty upset about this whole thing..I have 4 days supply left actually. I ramped up faster than originally planned, so I thought I had more Nardil left than I did. I'm thinking lowering my dosage until/unless ERFA somehow comes through and send the meds direct like they promised they would. Very scary. A cold turkey full stop would be rather unpleasant, I have the feeling...
Phoenix1
Posted by Justherself54 on January 18, 2008, at 10:05:48
In reply to Re: ATTN NARDIL USERS/Phoenix1 » Justherself54, posted by Phoenix1 on January 18, 2008, at 9:20:58
I can't imagine how nervous you are feeling right now..I had luck getting it in the large pharmacies in the city..where's there more population, there may be more bottles of Nardil lurking on their shelves..I know you tried calling a ton of them, but maybe try the big ones in another city, and they could courier it to you? Just a thought..if you could just locate one bottle, it might get you through without decreasing until this is over..Can you call ERFA and make sure they really do have it as they said and get them to get it to you ASAP..at least you'll know if they were telling you the truth..
I asked my doctor what would happen if I were to suddenly run out and he mentioned switching over to Parnate for a short term..said cold turkey not good, although I'm sure I've read here where a poster has done it..
I'm thinking of you my Nardil buddy..
Posted by Phoenix1 on January 18, 2008, at 13:30:10
In reply to Re: ATTN NARDIL USERS/Phoenix1, posted by Justherself54 on January 18, 2008, at 10:05:48
> I can't imagine how nervous you are feeling right now..I had luck getting it in the large pharmacies in the city..where's there more population, there may be more bottles of Nardil lurking on their shelves..I know you tried calling a ton of them, but maybe try the big ones in another city, and they could courier it to you? Just a thought..if you could just locate one bottle, it might get you through without decreasing until this is over..Can you call ERFA and make sure they really do have it as they said and get them to get it to you ASAP..at least you'll know if they were telling you the truth..
>
> I asked my doctor what would happen if I were to suddenly run out and he mentioned switching over to Parnate for a short term..said cold turkey not good, although I'm sure I've read here where a poster has done it..
>
> I'm thinking of you my Nardil buddy..Justherself54
ERFA retracted their offer to send Nardil directly to my pharmacy. The issue was, they extended the offer to me 2 weeks ago. I did not have a new prescription from my pdoc until yesterday. Now they are saying that they have shipped to distributors, so they won't ship to my pharmacy for me... New date to retail stores~ 1/26. That leave 4 days with no Nardil. So instead of increasing my dosage from 60mg to 75mg, I will reduce my dose to 30mg just to be on the safe side. I have no choice. To stop cold turkey would probably put me back in the hospital.
My pdoc says Parnate is not an option. He has next to no experience with MAOI's (I'm the first patient he has prescribed one to since his residency). He says I would have to do the 14 day washout if I wanted to try Parnate. No direct switch to cover
I've been doing so well on Nardil, I'm afraid to not have it. I've been able to completely stop daytime benzos (yup, 100% finished the clonazepam), and have started reducing sleep meds (Seroquel from 75mg to 50mg, now trying to lower further)
Anyways, just afraid to slide back downhill without my trusty Nardil. Feeling depressed at the prospect of all this.
Phoenix1
Posted by Justherself54 on January 18, 2008, at 14:35:06
In reply to Re: ATTN NARDIL USERS/Phoenix1 » Justherself54, posted by Phoenix1 on January 18, 2008, at 13:30:10
I babblemailed you..it's a stretch..but might be worth looking at..
Posted by ny2bk on January 18, 2008, at 16:13:04
In reply to Re: ATTN NARDIL USERS/Phoenix1 » Justherself54, posted by Phoenix1 on January 18, 2008, at 13:30:10
Ok i actualy wanted to post this here but never got around to it,just a few thoughts and suggestions on maoi issues.
FIRST let me state this is my opinion only,nothing more,from use of the two in question.
I dont understand the big hooplad of washout from Maoi - Maoi,yess there is a differance in method of carrier so a few days might be suffice,but to give it two weeks the same as ssris is just being to overly cautious which in some cases could hurt someone worse having to wait it out rather then starting the new med.I do totaly agree with washout periods of ssris and maois,and maois and other classes,i just dont when its a maoi-maoi agree more than a day or so is needed,mainly not WEEKS!!!!!
NOTE - I CAN FIND the article,but there was a study i kept where parnate preteatment was actualy done with ,YESS nardil to create the maoi foundation and more so the gaba increase...then parnate would be added alone.
The success rate when this was done was higher then parnate alone,however it was of cource a small study with figures not nearly enough to produce to public,but it was done,again it was NARDIL used priot to parnate as PRE TREATMENT.
NEXT maoi users really have to protect themselves.Some of the pitfalls can be,...
Your doc one day,out of the blue,feels he will no longer continue you on a maoi,and wants you off,or he wont treat you.
Bad part here,its very possable you can find yourself hunting for a loooong time to replace that doc with another who will use maois period.
Next problem,pharmacy vary,some care very much,some simply dont,and some can go oops we actualy dont have any on the shelf,to we cant seem to re order and so on.
Maois are not like ssris,you cant go to the next pharmacy instead and get it there.
In a mistake i found me and my father years ago calling as far as two citites to find a pharmacy carrying parnate to help me out of my w/d.
These are just some things,i honestly recomend if you are a maoi user,you find a way to get extra,bring in a family member perhaps to talk to your doc,ask for a additonal quantity with a family memember vouching they will hold it and its for emergency only,depending on the doc,this will either be a joke to them or will work 100 percent,ive seen both end results.Do what you have to not to be on the wrong end of your maoi having some form of issue,do whatever it takes for you to create a small emergency suppply,then give it to a trusted friend or family to hold so you dont mistakenly use it.
This way if a insurance issue comes up,a pharmacy issue,a doc issue,etc,you might not have a full quatnitity on hand,but you wont have to w/d,just cut back which BELIEVE ME IS ARE 2 SEPERATE BEASTS.
Now with the small quantity and if you use then the addition of a benzo you can not be under a total paniack as you begin to remedy the sitituation at hand.I have many people close to me,myself included who fear what will happen if the drug is simply stopped.
Also i just now recieved a notice that for the new year PARNATE is no longer in my insurances formulary,.....sigh now i have to go and bug my doc to call a number to get a exception.
Being a maoi user does involve a lot more then taking the med.
Sorry for bad grammer,also wish i could have gotten more in,anyway feedback appreciated,bye.
Posted by Phoenix1 on January 18, 2008, at 17:28:08
In reply to Re: ATTN NARDIL USERS/Phoenix1/Stinks, posted by ny2bk on January 18, 2008, at 16:13:04
> Ok i actualy wanted to post this here but never got around to it,just a few thoughts and suggestions on maoi issues.
>
> FIRST let me state this is my opinion only,nothing more,from use of the two in question.
> I dont understand the big hooplad of washout from Maoi - Maoi,yess there is a differance in method of carrier so a few days might be suffice,but to give it two weeks the same as ssris is just being to overly cautious which in some cases could hurt someone worse having to wait it out rather then starting the new med.
>
> I do totaly agree with washout periods of ssris and maois,and maois and other classes,i just dont when its a maoi-maoi agree more than a day or so is needed,mainly not WEEKS!!!!!
>
> NOTE - I CAN FIND the article,but there was a study i kept where parnate preteatment was actualy done with ,YESS nardil to create the maoi foundation and more so the gaba increase...then parnate would be added alone.
>
> The success rate when this was done was higher then parnate alone,however it was of cource a small study with figures not nearly enough to produce to public,but it was done,again it was NARDIL used priot to parnate as PRE TREATMENT.
>
>
> NEXT maoi users really have to protect themselves.
>
> Some of the pitfalls can be,...
>
> Your doc one day,out of the blue,feels he will no longer continue you on a maoi,and wants you off,or he wont treat you.
>
> Bad part here,its very possable you can find yourself hunting for a loooong time to replace that doc with another who will use maois period.
>
> Next problem,pharmacy vary,some care very much,some simply dont,and some can go oops we actualy dont have any on the shelf,to we cant seem to re order and so on.
>
> Maois are not like ssris,you cant go to the next pharmacy instead and get it there.
>
> In a mistake i found me and my father years ago calling as far as two citites to find a pharmacy carrying parnate to help me out of my w/d.
>
>
> These are just some things,i honestly recomend if you are a maoi user,you find a way to get extra,bring in a family member perhaps to talk to your doc,ask for a additonal quantity with a family memember vouching they will hold it and its for emergency only,depending on the doc,this will either be a joke to them or will work 100 percent,ive seen both end results.
>
> Do what you have to not to be on the wrong end of your maoi having some form of issue,do whatever it takes for you to create a small emergency suppply,then give it to a trusted friend or family to hold so you dont mistakenly use it.
>
>
> This way if a insurance issue comes up,a pharmacy issue,a doc issue,etc,you might not have a full quatnitity on hand,but you wont have to w/d,just cut back which BELIEVE ME IS ARE 2 SEPERATE BEASTS.
>
>
> Now with the small quantity and if you use then the addition of a benzo you can not be under a total paniack as you begin to remedy the sitituation at hand.
>
> I have many people close to me,myself included who fear what will happen if the drug is simply stopped.
>
> Also i just now recieved a notice that for the new year PARNATE is no longer in my insurances formulary,.....sigh now i have to go and bug my doc to call a number to get a exception.
>
> Being a maoi user does involve a lot more then taking the med.
>
> Sorry for bad grammer,also wish i could have gotten more in,anyway feedback appreciated,bye.Very scary but true what you're saying, for anyone who relies on an MAOI for their mental health. Especially those of us who haven't responded to anything else. I think everything you say is unfortunately true. Every time I go in to see my pdoc I downplay side effects because he's already expressed that he doesn't like to prescribe MAOIs. So I'm so worried he'll just decide to stop prescribing... And then, like you say, it could be VERY hard to find a new pdoc that is willing to prescribe an MAOI. And nothing else works for me. I just REFUSE to try another SSRI. History should prove that they DO NOT WORK FOR ME. Sorry for the rant...
It seems, in my geographical area, MAOIs just AREN'T used at all. My pdoc estimates that there are fewer than 10 MAOI patients in a city of well over 2 million people. So yes, finding a willing pdoc is hard. And pharmacies have no idea what they're doing. I've had pharmacies argue with me over whether or not Nardil is still available, and some that just refuse to bring it in for me even though they know it's a currently available drug.
What a mess. Why does it always have to be a struggle?
Phoenix1
Posted by Justherself54 on January 18, 2008, at 20:12:50
In reply to Re: ATTN NARDIL USERS/Phoenix1/Stinks » ny2bk, posted by Phoenix1 on January 18, 2008, at 17:28:08
> > Ok i actualy wanted to post this here but never got around to it,just a few thoughts and suggestions on maoi issues.
> >
> > FIRST let me state this is my opinion only,nothing more,from use of the two in question.
> > I dont understand the big hooplad of washout from Maoi - Maoi,yess there is a differance in method of carrier so a few days might be suffice,but to give it two weeks the same as ssris is just being to overly cautious which in some cases could hurt someone worse having to wait it out rather then starting the new med.
> >
> > I do totaly agree with washout periods of ssris and maois,and maois and other classes,i just dont when its a maoi-maoi agree more than a day or so is needed,mainly not WEEKS!!!!!
> >
> > NOTE - I CAN FIND the article,but there was a study i kept where parnate preteatment was actualy done with ,YESS nardil to create the maoi foundation and more so the gaba increase...then parnate would be added alone.
> >
> > The success rate when this was done was higher then parnate alone,however it was of cource a small study with figures not nearly enough to produce to public,but it was done,again it was NARDIL used priot to parnate as PRE TREATMENT.
> >
> >
> > NEXT maoi users really have to protect themselves.
> >
> > Some of the pitfalls can be,...
> >
> > Your doc one day,out of the blue,feels he will no longer continue you on a maoi,and wants you off,or he wont treat you.
> >
> > Bad part here,its very possable you can find yourself hunting for a loooong time to replace that doc with another who will use maois period.
> >
> > Next problem,pharmacy vary,some care very much,some simply dont,and some can go oops we actualy dont have any on the shelf,to we cant seem to re order and so on.
> >
> > Maois are not like ssris,you cant go to the next pharmacy instead and get it there.
> >
> > In a mistake i found me and my father years ago calling as far as two citites to find a pharmacy carrying parnate to help me out of my w/d.
> >
> >
> > These are just some things,i honestly recomend if you are a maoi user,you find a way to get extra,bring in a family member perhaps to talk to your doc,ask for a additonal quantity with a family memember vouching they will hold it and its for emergency only,depending on the doc,this will either be a joke to them or will work 100 percent,ive seen both end results.
> >
> > Do what you have to not to be on the wrong end of your maoi having some form of issue,do whatever it takes for you to create a small emergency suppply,then give it to a trusted friend or family to hold so you dont mistakenly use it.
> >
> >
> > This way if a insurance issue comes up,a pharmacy issue,a doc issue,etc,you might not have a full quatnitity on hand,but you wont have to w/d,just cut back which BELIEVE ME IS ARE 2 SEPERATE BEASTS.
> >
> >
> > Now with the small quantity and if you use then the addition of a benzo you can not be under a total paniack as you begin to remedy the sitituation at hand.
> >
> > I have many people close to me,myself included who fear what will happen if the drug is simply stopped.
> >
> > Also i just now recieved a notice that for the new year PARNATE is no longer in my insurances formulary,.....sigh now i have to go and bug my doc to call a number to get a exception.
> >
> > Being a maoi user does involve a lot more then taking the med.
> >
> > Sorry for bad grammer,also wish i could have gotten more in,anyway feedback appreciated,bye.
>
> Very scary but true what you're saying, for anyone who relies on an MAOI for their mental health. Especially those of us who haven't responded to anything else. I think everything you say is unfortunately true. Every time I go in to see my pdoc I downplay side effects because he's already expressed that he doesn't like to prescribe MAOIs. So I'm so worried he'll just decide to stop prescribing... And then, like you say, it could be VERY hard to find a new pdoc that is willing to prescribe an MAOI. And nothing else works for me. I just REFUSE to try another SSRI. History should prove that they DO NOT WORK FOR ME. Sorry for the rant...
>
> It seems, in my geographical area, MAOIs just AREN'T used at all. My pdoc estimates that there are fewer than 10 MAOI patients in a city of well over 2 million people. So yes, finding a willing pdoc is hard. And pharmacies have no idea what they're doing. I've had pharmacies argue with me over whether or not Nardil is still available, and some that just refuse to bring it in for me even though they know it's a currently available drug.
>
> What a mess. Why does it always have to be a struggle?
>
> Phoenix1I don't know why it has to be such a struggle..I quess I can count myself lucky that my pdoc suggested Parnate first..I think he's more familiar with Parnate..I'm his only patient on Nardil..I can't do the SSRI's either..they ALL poop out on me. It's awful that a pharmacy won't even bring it in for you..hopefully things will be better now that at least it's make it into the country. I wanted my pharmacist to stockpile some for me but she said by law they can only do 3 months at a time..that made me nervous. Going to talk to pdoc about it and see if he'll write another script that I can take to another pharmacy and start my own little stockpile..if it's legal to do that..
Posted by Phoenix1 on January 18, 2008, at 20:24:09
In reply to Re: ATTN NARDIL USERS/Phoenix1/Stinks BIG TIME, posted by Justherself54 on January 18, 2008, at 20:12:50
> > > Ok i actualy wanted to post this here but never got around to it,just a few thoughts and suggestions on maoi issues.
> > >
> > > FIRST let me state this is my opinion only,nothing more,from use of the two in question.
> > > I dont understand the big hooplad of washout from Maoi - Maoi,yess there is a differance in method of carrier so a few days might be suffice,but to give it two weeks the same as ssris is just being to overly cautious which in some cases could hurt someone worse having to wait it out rather then starting the new med.
> > >
> > > I do totaly agree with washout periods of ssris and maois,and maois and other classes,i just dont when its a maoi-maoi agree more than a day or so is needed,mainly not WEEKS!!!!!
> > >
> > > NOTE - I CAN FIND the article,but there was a study i kept where parnate preteatment was actualy done with ,YESS nardil to create the maoi foundation and more so the gaba increase...then parnate would be added alone.
> > >
> > > The success rate when this was done was higher then parnate alone,however it was of cource a small study with figures not nearly enough to produce to public,but it was done,again it was NARDIL used priot to parnate as PRE TREATMENT.
> > >
> > >
> > > NEXT maoi users really have to protect themselves.
> > >
> > > Some of the pitfalls can be,...
> > >
> > > Your doc one day,out of the blue,feels he will no longer continue you on a maoi,and wants you off,or he wont treat you.
> > >
> > > Bad part here,its very possable you can find yourself hunting for a loooong time to replace that doc with another who will use maois period.
> > >
> > > Next problem,pharmacy vary,some care very much,some simply dont,and some can go oops we actualy dont have any on the shelf,to we cant seem to re order and so on.
> > >
> > > Maois are not like ssris,you cant go to the next pharmacy instead and get it there.
> > >
> > > In a mistake i found me and my father years ago calling as far as two citites to find a pharmacy carrying parnate to help me out of my w/d.
> > >
> > >
> > > These are just some things,i honestly recomend if you are a maoi user,you find a way to get extra,bring in a family member perhaps to talk to your doc,ask for a additonal quantity with a family memember vouching they will hold it and its for emergency only,depending on the doc,this will either be a joke to them or will work 100 percent,ive seen both end results.
> > >
> > > Do what you have to not to be on the wrong end of your maoi having some form of issue,do whatever it takes for you to create a small emergency suppply,then give it to a trusted friend or family to hold so you dont mistakenly use it.
> > >
> > >
> > > This way if a insurance issue comes up,a pharmacy issue,a doc issue,etc,you might not have a full quatnitity on hand,but you wont have to w/d,just cut back which BELIEVE ME IS ARE 2 SEPERATE BEASTS.
> > >
> > >
> > > Now with the small quantity and if you use then the addition of a benzo you can not be under a total paniack as you begin to remedy the sitituation at hand.
> > >
> > > I have many people close to me,myself included who fear what will happen if the drug is simply stopped.
> > >
> > > Also i just now recieved a notice that for the new year PARNATE is no longer in my insurances formulary,.....sigh now i have to go and bug my doc to call a number to get a exception.
> > >
> > > Being a maoi user does involve a lot more then taking the med.
> > >
> > > Sorry for bad grammer,also wish i could have gotten more in,anyway feedback appreciated,bye.
> >
> > Very scary but true what you're saying, for anyone who relies on an MAOI for their mental health. Especially those of us who haven't responded to anything else. I think everything you say is unfortunately true. Every time I go in to see my pdoc I downplay side effects because he's already expressed that he doesn't like to prescribe MAOIs. So I'm so worried he'll just decide to stop prescribing... And then, like you say, it could be VERY hard to find a new pdoc that is willing to prescribe an MAOI. And nothing else works for me. I just REFUSE to try another SSRI. History should prove that they DO NOT WORK FOR ME. Sorry for the rant...
> >
> > It seems, in my geographical area, MAOIs just AREN'T used at all. My pdoc estimates that there are fewer than 10 MAOI patients in a city of well over 2 million people. So yes, finding a willing pdoc is hard. And pharmacies have no idea what they're doing. I've had pharmacies argue with me over whether or not Nardil is still available, and some that just refuse to bring it in for me even though they know it's a currently available drug.
> >
> > What a mess. Why does it always have to be a struggle?
> >
> > Phoenix1
>
> I don't know why it has to be such a struggle..I quess I can count myself lucky that my pdoc suggested Parnate first..I think he's more familiar with Parnate..I'm his only patient on Nardil..I can't do the SSRI's either..they ALL poop out on me. It's awful that a pharmacy won't even bring it in for you..hopefully things will be better now that at least it's make it into the country. I wanted my pharmacist to stockpile some for me but she said by law they can only do 3 months at a time..that made me nervous. Going to talk to pdoc about it and see if he'll write another script that I can take to another pharmacy and start my own little stockpile..if it's legal to do that..
>
>Just to let people know, I found some. 2 hour drive from here, bizarre story/situation. But at least I won't have to reduce my dosage or stop cold turkey. The whole ridiculous situation makes me totally paranoid of running out, like I need to stockpile for the future. It's totally ridiculous. It shouldn't be this hard just to get a frickin prescription filled.
Phoenix1
This is the end of the thread.
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